** UPDATE ** I posted the wrong link for the questionnaire but it should now be correct :)
Hi. My name is Maria and I am a student at Nottingham University studying an MSc in Health Psychology. I am currently conducting some research and I am looking for participants to take part in a short online questionnaire. The questionnaire takes around 15 minutes to complete, and has full ethical approval from the university. Responses will be confidential and anonymous.
The research is interested in your experiences of seeking health information online and what experiences you have had when you have shared this with health care providers such as your GP. .
Hi. My name is Maria and I am a student at Nottingham University studying an MSc in Health Psychology. I am currently conducting some research and I am looking for participants to take part in a short online questionnaire. The questionnaire takes around 15 minutes to complete, and has full ethical approval from the university. Responses will be confidential and anonymous.
The research is interested in your experiences of seeking health information online and what experiences you have had when you have shared this with health care providers such as your GP. .
If you are interested in taking part please follow the link below.
For more detailed information on the research please read the background information below. :)
More and more people are using the internet to search for information on
symptoms or treatment with regards to a specific disease and an
increasing amount of the population use the internet to help make important
health decisions.
As information on the
internet is unregulated many sources of
information online may be viewed as unreliable. Despite an increasing proportion of the public using the
internet for health information, it still remains unclear whether this effect
is beneficial or harmful, and little has been published on the consequences on
healthcare providers and users on the use of the internet.
It has
been suggested that some physicians may feel patients are challenging their
authority when bringing in health information obtained from the internet. Physicians
have expressed concern that patients may misinterpret online information and
that only qualified medical professionals may interpret this information
adequately. What research must now
do is discover what the impact of this is, how positive results can be
obtained, and provide advice to both patients and practitioners alike to facilitate
this.
Chronic undiagnosed symptoms
This study is concerned primarily with the pre-diagnosis
stage, and the population focus will be on people suffering from chronic,
undiagnosed symptoms (Or diagnosed symptoms retrospectively). People
in this population may be more likely to seek the internet from information and
bring this information to their doctor out of desperation.
Chronic conditions
which historically have a tendency to display vague, ambiguous symptoms will be
looked at. For example, Multiple sclerosis, endometriosis, chronic fatigue
syndrome, fibromyalgia. When symptoms continue to be undiagnosed by healthcare
providers patients may turn to the internet and in some instances may find that
the internet provides more information on what might be causing their symptoms
than their GP, for example (Diaz, Griffith,
Ng, Reinert, Friedmann, & Moulton
(2002) found that 60% of participants in their
survey rated internet based information as the same as or better than
information provided by their general practitioner.
Facilitating the use of the
internet and making it a positive experience for both healthcare provider and
patient is of upmost importance particularly within this population. Since NHS
providers are already restricted time wise and financially, pro-active patients
actively researching possible problems themselves could save much time and
money if this was done effectively. With particularly vague or difficult to
diagnose conditions, doctors may not simply have the time or the motivation to
go into such depth with regards to researching possible diagnosis as patients
may, therefore, exploring the issues around internet health searching within
this population would be of particular use.
Main Aims
Therefore, the main aims of this study are as follows:
- Explore what
motivates patients to seek information about their symptoms on the
internet and/or present these findings to their healthcare provider
- Explore ways this
may impact upon the relationship between the patient and the healthcare
provider
- Investigate what
factors lead to negative and positive effects
- Use the findings to discuss ways in which we may improve the patient provider relationship in regards to this and provide advice on how to facilitate internet searching in a positive way for both the healthcare provider and the patient.
** A note on the Health Anxiety Inventory **
Part of my questionnaire contains a scale known as the health anxiety inventory (or the HA1 for short). Many participants have shown concern about the use of this scale and what use it is in the study. In particular, some of you have shown concern that this scale may be being used to suggest that your illness is "not real" or that your symptoms are the result of hypochondriasis. I would like to let you all know of the reasons for having this scale in the questionnaire.
* The scale has been validated across a number of groups, but has not been sufficiently validated across groups suffering from physical illness.
* I want to explore whether there is a relationship between high scores on this particular scale and other answers to questions
* I want to explore whether individuals with chronic symptoms, particularly those that were undiagnosed or took a while to diagnose, would score high on this questionnaire compared to healthy individuals. If so I want to suggest reasons that this may be aside from hypochondriasis.
* I want to explore whether high scores on the HAI are more frequent in those patients who cite their doctor as not taking them seriously or not having a sufficient understanding of their illness.
* I want to know whether high scores on the HAI are associated with how long patients take to get a diagnosis.
* And finally any other relationships which I may have not thought of.
My research is not concerned with the cause of illness, and, I will not be using the HAI to suggest the cause of illness. I am merely concerned with the relationships between the answers on the questionnaires and would like to discuss why these may occur, what issues may arise, and how these challenges might be dealt with. Thanks :)